Cancer-Related Genetic Testing and Counseling by Institute of Medicine, National Cancer Policy Forum

By Institute of Medicine, National Cancer Policy Forum

These lawsuits of a workshop provided to the Institute of Medicine's (IOM) nationwide melanoma coverage discussion board on March 30, 2007, are the results of discussion board discussions approximately genetic checking out and counseling at its conferences on June sixteen and October 30, 2006. these discussions, led by means of discussion board contributors Betty Ferrell and Patricia Ganz, famous that genetic trying out and counseling have gotten extra advanced and significant for informing sufferers and households of hazards and advantages of sure classes of motion, and but prepared professional courses are briefly supply.

The subject material consists of not just the clinical and medical facets but additionally group and compensation matters, between others. Drs. Ferrell and Ganz proposed that the discussion board may supply an invaluable evaluation of a number of the vital implications of those matters by way of conserving and reporting a workshop at the topic. They volunteered to paintings with employees to arrange and lead one of these workshop. The time table for the workshop is reproduced within the appendix to those lawsuits. It comprises the shows of the invited audio system and the reviews of audio system, discussion board contributors, and others in attendance as transcribed and edited to put off redundancies, grammatical blunders, and differently lead them to extra readable. Cancer-Related Genetic checking out and Counseling : Workshop Proceedings summarizes the workshop.

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Extra resources for Cancer-Related Genetic Testing and Counseling

Example text

Even looking at just the family history, that should have been clear. Turning now to the training of genetic counselors: there are 27 programs that are accredited by the American Board of Genetic Counseling. There are three that have what we call provisional status; they are most likely going to be programs, but they are going through the application process. These programs are not evenly distributed; they are mostly in the eastern states and the Midwest. We would love to have a program in the Pacific Northwest, but for various reasons that has not happened.

All rights reserved. html 26 cancer-RELATED GENETIC TESTING AND COUNSELING demand for breast cancer services, and I think that demand will increase for colon cancer as well, as we learn more and can offer more. Genetic ­counselors are experts in this field. They should be among the people who are providing these services, although they are not the only people. It is essential that there be some national attention to supporting the training of genetic counselors, because there is definitely a way to increase the workforce that is not being addressed.

If you say no to everything except Ashkenazi Jewish ancestry they still recommend testing. You receive a personalized report. The company states that it has board-certified genetic counselors on staff and provides posttest consultation as part of the service. If you fill out the online questionnaire answering no to every question except that you were diagnosed with breast cancer after age 50—for example, no to any family history and things like that—the site recommends full gene sequencing because you are the first person in the family to be tested, and you don’t have Ashkenazi Jewish ancestry.

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